Tuesday, March 06, 2007

Post treatment warning label

should read: don't expect the moon, instant recoveries, or patient children.

Still tired, easily lit on fire, and my head still hurts..... searching to find the improvements (I know it's only been 4 days), have come up with two: no more pulse-pace swooshing in my head (I know I've already mentioned this one, but it's a biggie, deserves repeat), and no more visual disturbances, flashing lights, or spotty blackouts (not since last Friday). So that's good.

But when will I get an energetic day? That's what my daughter would like to know. I've explained the uncertain logistics, but honestly I'm struggling with impatience as well. Typical. More of my perpetual drill: stay realistic, stay realistic, stay realistic...

Still better than treatment! Oh Yeah! Way better! Hands down! No contest! Just still kind of the same though....

ps. (7 hours later) scratch the "no more visual disturbances" off the list, got some doozies in the store today. I was tired, hungry, all the usual lead-ins, then hello.... damn.... lower my expectations, lower my expectations, lower my expectations....

10 comments:

Ros said...

Hey there! My name's Ros, I've got to your blog via a friend of mine Jae in London, I'm a girl who also had Hep C and who got rid of it after two lots of treatment and am still clear over three years later.

It did take time to get over the drugs but don't worry, just give it time and things will improve. It was a nightmare for me but I'd still do it all again to be in the position I'm in now HCV free - like you!

All the very best for your recovery....

Jason Paul Tolmie said...

It'll come Ample, trust me! It is fast on it's way for sure. You just finished......a little more time and the world is your oyster. You will be running around with your daughter in your arms in no time.....believe me.

As for the Moon.....Check out your e-mail in-box:)

Chris Vacano said...

Hey Ample,

I concur with Jason and Ros (hi guys!). Bear in mind that the interferon's activity arc is a week long, so it will still be highly active in your system until Friday, although you should probably have peaked by now. It's been a while since I quit the Riba, but I think it took at least a week for the brain-fog to clear. My guess is that you'll truly start to feel a bit of improvement on Saturday... and it will gradually build as the chemistry dissipates out of your system. I've heard it can take up to three months to completely clear this stuff... I certainly hope it goes faster for you. :-)

Big hugs! Hang in there.

Chris

Anonymous said...

I have been following you and your experience...I to have been on the same course of tx as you ...mine ended 7 days before you....What iam wanting to say to you is thanks....You gave me courage you made me laugh but the biggest thing was..you sayed everything that i could not...things i was feeling that i could never put into words...my thoughts and feelings came pouring out onto your blog....I really do not have the words to tell you how much you have enriched my life.....thanks seems so small....So congradulations and bye the way thanks.......sheila

Ample said...

Thanks guys (and hello Ros! any friend of Jae's is a friend of mine!)

Good info... I half knew it, but definitely didn't "know" it... thank you... I'll cling patiently till Saturday, look for sign, then cling some more :) Aaaaaaa, coping should be easy by now, right? Thanks again, for everything.

Not Blank said...

pulse pace swooshing...it will be nice to get rid of that! there's one you don't see mentioned in any patient information brochures!

Ample said...

Sheila: You made my day. That was so nice. I... don't know what to say. Thank YOU. Thank you so very much.

I don't know how your comment is listed above mine.... I swear it was not there when I last posted. I feel I missed out on hours of joy! Thank you for writing those words.

And congrats on finishing treatment!!! Here's to SVR!! Are your sides gone yet?????

TeaStarWitch said...

Ample, recovery takes some time, you have to be lucky to feel all the same right away.
Give it couple of weeks and you will be as strong as before.
Love and light to you
Teah

Anonymous said...

Oh, Ample, I'm so happy for you. It's almost over. Just be patient with yourself for a little -- bit -- longer. You will be strong. Just breathe, be kind to yourself, and trust that all will be well, no matter what.

I, too, have been following your blog and have been so inspired by your honesty, courage, and wisdom... even on what must have been your worst days. Instead of crawling into yourself and hiding for the duration, you wrote poetry, truly beautiful poetry, about enjoying the simple pleasures of life, sitting on your porch with the sun on your face, flowers, Halloween, whales, patience, pain, and your ever-present love and concern for your family. That beautiful spirit that I’ve seen beaming out of your eyes, and that I’ve heard tinkling through your laughter, has never faltered, it has only strengthened. You have shown me how to find hope, wonder, and beauty in life, while living through pain, humiliation, frustration, and anger. You are a gift to all of us, and I thank you from the bottom of my heart for sharing yourself so selflessly.

Ample said...

Whoa.... is someone messing with me? Another unbelievably wonderful comment. Feels too good to be real, but I like, so I'll keep it.... just don't ever tell me when the joke is over.

Thank you so very much for saying such great things. Thanks.