It's hard to let go of Fridays, when my sides are finally manageable, when I've lightly brushed the concept of mobility, maybe even felt a spot of physical strength. I often lie in bed and observe the "last day till tomorrow". Sleeping means it's over. It's a decision to wake up. Just a little while longer, I look around, take in a few breaths.
Then it's Saturday, the worn pillbox, and the hole. I'll wake slowly, assessing my physical state, checking parts. I'll have just a few more hours till it really sets in, till the combination kicks, speech fails me, skies darken, I retreat into my hermit nature, and no pain relief will erase it.
Saying good bye to these moments every week. Only five more to go.
Saturday, January 27, 2007
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2 comments:
Having just read your latest post, I can totally see what you're saying.........then not, at exactly the same time. I know I am finding it much easier and so much wish that that wasn't the case. I just simply cannot imagine what you must be going through.......and others like you. Why me? Why did I get away with the sides? I don't feel too grateful at all........just very selfish!
It is a difficult post to read! It is exactly the kind of stuff that prompted me to write that poem "The Delicate Art of You More Than Me". I wish there was something I could do to help! It's not fair.........I will probably.....Know it actually, forget all about this tx some time soon, even if the outcome is bad. But I am willing to bet that you will remember this for the rest of your life!
You are so much stronger than I will ever be Ample!! If I had the same feelings as yours whist on tx, I would have failed right at the beginning.......I know it!
Please don't think that I don't think about you guys whilst I am out on my bike on a Friday/Sunday.......because I do.....so much!
Hang in there........
Jae
Right, right, very familiar, checking myself when wake up, observing what it brought this time... Sucks, but only 5 to go...
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